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My baby boy, Ollie, is just 12 months old. He was unexpectedly diagnosed at only two weeks old with a very rare and complex heart condition: pulmonary atresia with ventricular septal defect and major aortopulmonary collateral arteries (PA-VSD MAPCAs). Since then, Ollie has spent much of his first year in and out of hospital. Despite everything he’s been through, he is the happiest, cheekiest little boy - he loves bubbles, ducks, and making everyone around him laugh. Ollie is my only child, and my entire world. He deserves the chance to grow up, to go to school, to live the full life that every child should have.
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